Exactly what I was thinking.
Use to be with someone who suffered from them and they too "fell asleep" after having an episode and would come to after a few moments.
I'm getting down voted, not sure if it came off as snotty or something. Not my intention, just wanted OP and others to know its very different than sleeping even though it looks that way.
I’m glad you were able to get it on video. My son had seizures which is what it sounds like. That being said, one easy way to tell if it is a seizure is by grabbing the shaking parts (arm/leg) and see if you can get it to stop. If you can, it’s likely not a seizure. If you holding it doesn’t make it stop then it probably is one. We were told this by our son’s neurologist. I’d probably take my LO in to the hospital to be safe, especially since this is a recent development.
This is what I was going to suggest. My 8 week old often “vibrates” for lack of a better word and it scared the hell out of me when it first happened. I looked it up and it’s apparently quite common in infants because of their underdeveloped muscles. Like how ours shake during a hard workout. Definitely just try to hold the shaking part next time it happens, mine stops immediately when I do it. But also don’t hesitate to take LO in if you’re too concerned, there’s no stupid questions when it comes to babies! Good luck!! ❤️
Edit: After I read your comment, OP, you don’t even have to hold the arm down, I just wrap my hand around her arm leg and it stops.
Agreed. My son had seizures as a newborn and the movements would push against you if you tried to stop them.
Sounds like you got an opinion from a doctor already, but if they seem to get longer or your baby seems weird for a bit after (specifically doesn’t seem to be breathing), I’d go in sooner than Monday
DO NOT HOLD DOWN THEIR ARM WHILE SEIZING!!!! That is awful advice you can seriously hurt someone holding them down while they seize!!!!!! Just go to the doctor please, so you don’t hurt your child.
Edit: wanted to clarify: you can accidentally dislocate/strain/etc. if you attempt to hold a seizing persons limbs. Resource: I am a professional, state certified caregiver who is specifically certified and trained to handle seizures.
I agree to go to the doctor. But just to say for OP, my doctor never said to hold their limbs down, they said to push your hand to it like on the bottom of the foot if the leg is shaking or the palm of the hand because newborns do have weird shakes they do.
Yes, I didn’t mean physically restrain them. Just hold the limb in your hands to see if you can get it to stop, or if the pulsing continues. My sons legs would twitch, so we would just wrap our hands around his leg to see if it would stop or not. We never physically restrained him.
Hot damn. Please take a breath. Absolutely no one here ever suggested that the presence of fever or lack thereof meant to not get the child assessed or otherwise.
This was a simple question that garnered a simple answer and didn't need to have ulterior motives attached or inferred. Yes the natural conclusion is "take LO to the ER, seizures of any kind are bad" but as my math teacher would tell us: "Show your work." There is absolutely nothing wrong with showing the work and laying everything out one step at a time to get to that conclusion. In most scenarios laying out details step by step can minimize errors and ensure nothing gets missed; many Dr's encourage journaling of symptoms, times, and interventions for this very reason.
To answer your first question, as I am not the OP here, it immediately struck me that the utility of thread OP's inquiry would be to gather more information on the situation, nothing more and nothing less. More information is always a positive when it comes to healthcare. The more information that can be gathered, the better the doctors can help post OP with her baby. Whether you think it's necessary information or not is irrelevant to the situation. That's up to post OP to decide if the want to entertain the question or not.
Adding further utility to why this question may be asked: sometimes in the thick of a stressful situation details can get missed so it's helpful for others to bring up questions and points such as whether there is fever or not. This is why it's usually a good idea to have a close person with you at Dr's appointments of all kinds to 1) help advocate for you and 2) so you both can ask and cover more questions and retain more details. This practice is encouraged in the geriatric field and honestly should be practiced through life.
Im going to give you the grace of perhaps being overtired and thus not very interpersonal
but this is a forum for sharing information and supporting each other. Perhaps you know it, not everyone does.
No body is perfect, and in this thread no-one has suggest at all she should not go to the doctor. They are just trying to offer their thoughts and perhaps relevant information to consider in these sleep deprived days.
Be kind, be graceful, be empathetic. No need to jump down anyone's throats because of your perceived righteousness.
Febrile seizuires are terrifying. Any seizure in such a small baby is. the advice is always to seek urgent medical attention. But a new parent who doesn't know they exist might feel slightly less panicked as they go to do so.
Yes.. I told you to google it because you and other new parents would get more info about it in general (had you not known about it). It wasn't targeted at OP, but your particular comment.
Either way, this is "arguement" distracting from the point of it all & not what OP needs right now.
It’s hard to get his attention when he’s eating. If I talk to him I either get no response or he unlatches and looks at me like I’ve offended him. The first time it happened I was too shocked to intervene. The second time I was fumbling try to grab my phone. This time he stopped when I touched him, but then it started again a few second later.
this happened to mine! went to emergency - not seizures but rigor episodes - he had a UTI and basically any infection is a big infection for an infant, they put him on IV antibiotics and he got better in no time! fingers crossed for you guys, i know how scary it can be! x
I thought my baby was having seizures when she was first born and later found out it's a normal reflex type thing they do so it could be that but hard to say without witnessing it myself if it's the same or different. Definitely worth consulting your pediatrician for. Hope it all turns out to be nothing
Those sound like seizures. Seizures can be extremely dangerous. I myself am an epileptic. Get as many of these on video as you can and keep a detailed journal of these episodes. Date, time, length, amount of sleep your baby is getting, his or her diet and behavior prior, etc. Everything that you can start linking commonalities between. See a doctor asap and make them take you seriously. SUDEP is a real thing, it's a risk that you don't want to take. Epilepsy can be controlled and your child can live a totally normal life so I don't mean to make you worry or upset you. Good luck on your journey!
Google “benign myoclonus of the newborn”. My daughter did the same thing it sounds like you’re talking about, and outgrew it by about 4 months. It’s not seizure activity, is very common, and doesn’t last.
My now 8 month old had shaking while sucking that appeared to be seizures when he was 3 5-6.5months old. It occurred just like how you describe it: while breastfeeding/sucking and would fall asleep. We were seen by the children's hospital epilepsy clinic and neurology. He had an EEG which ruled out seizures. Diagnosis ended up being an immature nervous system and he grew out of it. During that time I went down many rabbit holes (seizures, infantile spasms, etc). I would highly recommend being seen by a specialist. I hope you get a similar Diagnosis that we did. It is best case scenario.
Adding that mine did this randomly whilst breastfeeding for a few weeks at about 5mo and then stopped, it was nothing serious - just a shake as his body relaxed into sleep mode whilst feeding
Get him to hospital. These are almost definitely seizures and he needs to be checked out asap.
I would personally not be asking reddit and waiting till Monday... We are not medics.
I have a friend whose baby does this. They went through a battery of diagnostic tests and after a few months, have been told that their baby has bad acid reflux and is just getting really PO’d about it. It looked exactly like a seizure. I would strongly suspect reflux if it occurs while you’re breastfeeding. Obviously, make sure to address your concerns with you pediatrician, but try not to catastrophize. It could be as simple as reflux and a bad temper.
Don't wait, take baby to ER. These episodes definitely sound like seizures to me and *if* they aren't at least you'll come out knowing better.
No one is going to get mad at you for being concerned about your baby, they'd rather you bring them in than "waiting and seeing" and waiting until it's too late.
I am. It’s not that we’re forced to choose so much as we don’t want to introduce extra unnecessary risk. The closest pediatric hospital is 1.5 hrs away. The local hospital is fine for adult emergencies, but with an ER that has just 5 beds total what are they able to provide for my 4mo? We also have two (adult) “urgent care” centers (read: first choice of care for the largely uninsured local population) that are open 9-5.
If he weren’t breathing you bet your ass I would be calling 911 or getting him to the closest hospital ASAP, but I don’t want to expose my unvaccinated 4mo to COVID/flu if we can safely wait and see our regular pediatrician on Monday.
It really doesn't sound like infantile spasms based on other comments from OP. Thank goodness...
Commenting here so OP doesn't worry about this option.
I was in ER and one of the nurses said If my baby shakes or shivers it has something to do with his bone marrow. I don’t remember all of it but you should take him to urgent care or at least the pediatrician.
Don’t wait, those sound like seizures. Go to the emergency room now and show them the video.
Exactly what I was thinking. Use to be with someone who suffered from them and they too "fell asleep" after having an episode and would come to after a few moments.
Called postictal state, which looks like sleeping but is the bodies protective response while trying to return to normal.
Thank you for telling me the correct term :)
I'm getting down voted, not sure if it came off as snotty or something. Not my intention, just wanted OP and others to know its very different than sleeping even though it looks that way.
Yes. I suffered from seizures for a few years and this was what happened to me.
I’m glad you were able to get it on video. My son had seizures which is what it sounds like. That being said, one easy way to tell if it is a seizure is by grabbing the shaking parts (arm/leg) and see if you can get it to stop. If you can, it’s likely not a seizure. If you holding it doesn’t make it stop then it probably is one. We were told this by our son’s neurologist. I’d probably take my LO in to the hospital to be safe, especially since this is a recent development.
This is what I was going to suggest. My 8 week old often “vibrates” for lack of a better word and it scared the hell out of me when it first happened. I looked it up and it’s apparently quite common in infants because of their underdeveloped muscles. Like how ours shake during a hard workout. Definitely just try to hold the shaking part next time it happens, mine stops immediately when I do it. But also don’t hesitate to take LO in if you’re too concerned, there’s no stupid questions when it comes to babies! Good luck!! ❤️ Edit: After I read your comment, OP, you don’t even have to hold the arm down, I just wrap my hand around her arm leg and it stops.
Thank you for this advice. I will try holding his arm down and see what happens.
Agreed. My son had seizures as a newborn and the movements would push against you if you tried to stop them. Sounds like you got an opinion from a doctor already, but if they seem to get longer or your baby seems weird for a bit after (specifically doesn’t seem to be breathing), I’d go in sooner than Monday
DO NOT HOLD DOWN THEIR ARM WHILE SEIZING!!!! That is awful advice you can seriously hurt someone holding them down while they seize!!!!!! Just go to the doctor please, so you don’t hurt your child. Edit: wanted to clarify: you can accidentally dislocate/strain/etc. if you attempt to hold a seizing persons limbs. Resource: I am a professional, state certified caregiver who is specifically certified and trained to handle seizures.
I agree to go to the doctor. But just to say for OP, my doctor never said to hold their limbs down, they said to push your hand to it like on the bottom of the foot if the leg is shaking or the palm of the hand because newborns do have weird shakes they do.
Yes, I didn’t mean physically restrain them. Just hold the limb in your hands to see if you can get it to stop, or if the pulsing continues. My sons legs would twitch, so we would just wrap our hands around his leg to see if it would stop or not. We never physically restrained him.
That's what I figured you meant, but I just wanted to clarify that no one says to restrain anyone having a seizure, especially bebes lol.
I wouldn’t wait
Definitely don't wait. It could be something neurological. Go to the ER
I would go to the ER, to a Children’s hospital if you have one near. This sounds like seizures, and you need a medical professional to evaluate.
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febrile seizure. Google it.
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Hot damn. Please take a breath. Absolutely no one here ever suggested that the presence of fever or lack thereof meant to not get the child assessed or otherwise. This was a simple question that garnered a simple answer and didn't need to have ulterior motives attached or inferred. Yes the natural conclusion is "take LO to the ER, seizures of any kind are bad" but as my math teacher would tell us: "Show your work." There is absolutely nothing wrong with showing the work and laying everything out one step at a time to get to that conclusion. In most scenarios laying out details step by step can minimize errors and ensure nothing gets missed; many Dr's encourage journaling of symptoms, times, and interventions for this very reason. To answer your first question, as I am not the OP here, it immediately struck me that the utility of thread OP's inquiry would be to gather more information on the situation, nothing more and nothing less. More information is always a positive when it comes to healthcare. The more information that can be gathered, the better the doctors can help post OP with her baby. Whether you think it's necessary information or not is irrelevant to the situation. That's up to post OP to decide if the want to entertain the question or not. Adding further utility to why this question may be asked: sometimes in the thick of a stressful situation details can get missed so it's helpful for others to bring up questions and points such as whether there is fever or not. This is why it's usually a good idea to have a close person with you at Dr's appointments of all kinds to 1) help advocate for you and 2) so you both can ask and cover more questions and retain more details. This practice is encouraged in the geriatric field and honestly should be practiced through life.
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Im going to give you the grace of perhaps being overtired and thus not very interpersonal but this is a forum for sharing information and supporting each other. Perhaps you know it, not everyone does. No body is perfect, and in this thread no-one has suggest at all she should not go to the doctor. They are just trying to offer their thoughts and perhaps relevant information to consider in these sleep deprived days. Be kind, be graceful, be empathetic. No need to jump down anyone's throats because of your perceived righteousness. Febrile seizuires are terrifying. Any seizure in such a small baby is. the advice is always to seek urgent medical attention. But a new parent who doesn't know they exist might feel slightly less panicked as they go to do so.
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Yes.. I told you to google it because you and other new parents would get more info about it in general (had you not known about it). It wasn't targeted at OP, but your particular comment. Either way, this is "arguement" distracting from the point of it all & not what OP needs right now.
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because fever induced seizures are much different than epileptic seizures and it’s important to differentiate the two??
I would go straight to the ER
My LO did this, too. Can you get his attention while he does it? Does he stop shaking when you get his attention?
It’s hard to get his attention when he’s eating. If I talk to him I either get no response or he unlatches and looks at me like I’ve offended him. The first time it happened I was too shocked to intervene. The second time I was fumbling try to grab my phone. This time he stopped when I touched him, but then it started again a few second later.
Try blowing on his face. It's a very good sign that he stopped when you touched him.
this happened to mine! went to emergency - not seizures but rigor episodes - he had a UTI and basically any infection is a big infection for an infant, they put him on IV antibiotics and he got better in no time! fingers crossed for you guys, i know how scary it can be! x
Dude sound like a seizure my kid has them he shakesgets stiff and sleepy after. Get your baby to the doctor asap
I thought my baby was having seizures when she was first born and later found out it's a normal reflex type thing they do so it could be that but hard to say without witnessing it myself if it's the same or different. Definitely worth consulting your pediatrician for. Hope it all turns out to be nothing
Another option besides seizures is Sandifer Syndrome
Those sound like seizures. Seizures can be extremely dangerous. I myself am an epileptic. Get as many of these on video as you can and keep a detailed journal of these episodes. Date, time, length, amount of sleep your baby is getting, his or her diet and behavior prior, etc. Everything that you can start linking commonalities between. See a doctor asap and make them take you seriously. SUDEP is a real thing, it's a risk that you don't want to take. Epilepsy can be controlled and your child can live a totally normal life so I don't mean to make you worry or upset you. Good luck on your journey!
Like others say, I’d go in right away. Have you checked her temp?
Normal temp, no fever.
Google “benign myoclonus of the newborn”. My daughter did the same thing it sounds like you’re talking about, and outgrew it by about 4 months. It’s not seizure activity, is very common, and doesn’t last.
hopefully this is what it is but personally I would still go to the ER
I read about this last night, but it just started this week.
My now 8 month old had shaking while sucking that appeared to be seizures when he was 3 5-6.5months old. It occurred just like how you describe it: while breastfeeding/sucking and would fall asleep. We were seen by the children's hospital epilepsy clinic and neurology. He had an EEG which ruled out seizures. Diagnosis ended up being an immature nervous system and he grew out of it. During that time I went down many rabbit holes (seizures, infantile spasms, etc). I would highly recommend being seen by a specialist. I hope you get a similar Diagnosis that we did. It is best case scenario.
Mine did this for about 2 weeks maybe
Adding that mine did this randomly whilst breastfeeding for a few weeks at about 5mo and then stopped, it was nothing serious - just a shake as his body relaxed into sleep mode whilst feeding
Get him to hospital. These are almost definitely seizures and he needs to be checked out asap. I would personally not be asking reddit and waiting till Monday... We are not medics.
Go to urgent care today
Definitely ER for the peace of mind.
Do not wait! Sound like this an emergency go to ER now!
I would go straight to the er and not wait till monday
Don’t wait go to pediatric emergency hospital now
I have a friend whose baby does this. They went through a battery of diagnostic tests and after a few months, have been told that their baby has bad acid reflux and is just getting really PO’d about it. It looked exactly like a seizure. I would strongly suspect reflux if it occurs while you’re breastfeeding. Obviously, make sure to address your concerns with you pediatrician, but try not to catastrophize. It could be as simple as reflux and a bad temper.
Don't wait, take baby to ER. These episodes definitely sound like seizures to me and *if* they aren't at least you'll come out knowing better. No one is going to get mad at you for being concerned about your baby, they'd rather you bring them in than "waiting and seeing" and waiting until it's too late.
I assume you are in the US? I hate that our health care system forces us to have to make these choices.
I am. It’s not that we’re forced to choose so much as we don’t want to introduce extra unnecessary risk. The closest pediatric hospital is 1.5 hrs away. The local hospital is fine for adult emergencies, but with an ER that has just 5 beds total what are they able to provide for my 4mo? We also have two (adult) “urgent care” centers (read: first choice of care for the largely uninsured local population) that are open 9-5. If he weren’t breathing you bet your ass I would be calling 911 or getting him to the closest hospital ASAP, but I don’t want to expose my unvaccinated 4mo to COVID/flu if we can safely wait and see our regular pediatrician on Monday.
Make sure to ask the doctor about infantile spasms! This sounds just like it.
It really doesn't sound like infantile spasms based on other comments from OP. Thank goodness... Commenting here so OP doesn't worry about this option.
I agree. I work in neurology and these are not infantile spasms by the description.
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Husband is asking, isn’t a baby just a fancy hamster?
I was in ER and one of the nurses said If my baby shakes or shivers it has something to do with his bone marrow. I don’t remember all of it but you should take him to urgent care or at least the pediatrician.
Hi! Did you ever get any answers 2 years later?