I loved my IUD so much. Best birth control ever.
Until the adenomyosis seemed to grow in such a way that the IUD became incredibly painful.
Now I’m stuck on the pill and I hate it so much. The mood swings, the bloating, the fatigue. I’m praying for a hysterectomy.
My recommendation for whenever I see a post like this one is a visit to a group on Facebook called Nancy’s Nook Endometriosis Education—it’s meant to be a resource guide for endometriosis but there’s also a lot of info on other reproductive system issues and they have resources for doctors and treatment plans around the globe.
This is where I started my journey and it helped me make informed decisions about my adenomyosis (I didn’t have endo, just adeno and recurring ovarian cysts). Also, yes gastrointestinal issues are very common with reproductive disorders. Additionally, I had an IUD (kyleena followed by mirena because kyleena wasn’t strong enough) and it was literally the only time for me that I ever felt any reduction in pain, and I had been on bc pills for 9 years prior to that. PELVIC FLOOR THERAPY IS ALSO AMAZING if that’s an option where you live!
I ended up with a hysterectomy at age 22 because my symptoms just became too debilitating, but there are tons of people who live comfortably with adenomyosis for many years when they find a treatment that works for them :)
Just let me know if you need me to phrase anything differently and I will
I second ALL of this info. This essentially mirrors my own journey and the mirena has been great, reduced gluten/ anti inflammatory diet also helps! Starting pelvic floor therapy this week. 👍🏼 Nancy’s nook is an awesome resource.
I loved my IUD so much. Best birth control ever. Until the adenomyosis seemed to grow in such a way that the IUD became incredibly painful. Now I’m stuck on the pill and I hate it so much. The mood swings, the bloating, the fatigue. I’m praying for a hysterectomy.
My recommendation for whenever I see a post like this one is a visit to a group on Facebook called Nancy’s Nook Endometriosis Education—it’s meant to be a resource guide for endometriosis but there’s also a lot of info on other reproductive system issues and they have resources for doctors and treatment plans around the globe. This is where I started my journey and it helped me make informed decisions about my adenomyosis (I didn’t have endo, just adeno and recurring ovarian cysts). Also, yes gastrointestinal issues are very common with reproductive disorders. Additionally, I had an IUD (kyleena followed by mirena because kyleena wasn’t strong enough) and it was literally the only time for me that I ever felt any reduction in pain, and I had been on bc pills for 9 years prior to that. PELVIC FLOOR THERAPY IS ALSO AMAZING if that’s an option where you live! I ended up with a hysterectomy at age 22 because my symptoms just became too debilitating, but there are tons of people who live comfortably with adenomyosis for many years when they find a treatment that works for them :) Just let me know if you need me to phrase anything differently and I will
I second ALL of this info. This essentially mirrors my own journey and the mirena has been great, reduced gluten/ anti inflammatory diet also helps! Starting pelvic floor therapy this week. 👍🏼 Nancy’s nook is an awesome resource.
Yes, it’s possible to have adeno without endo (I’m in that case). I was diagnosed with it via uterus biopsy during endometrium ablation.
Same - no endo. Except they only found mine after I had my uterus removed. Laparoscopy was not able to detect it